Reflux and the feeling of failure. The things we did for GERD with a newborn.

Our sweetness has reflux, GERD, (or the evil that makes babies scream) call it what you like. I feel like a Mommy failure. You have all these plans, the baby gets here and you have an idea of what you life will be. (well an inkling of an idea) First my beautiful baby with perfect baby skin developed eczema. Not just a little but everywhere. It was horrible. Finally resolving mostly with nightly baths in Eucerin Aquaphor wash and shampoo, as prescribed by her doctor. Her little skin finally looked better after about a week and a half. At about 8 weeks came the reflux. (step #1.) As a breastfeeding Mommy, I cut everything out of my diet that "they" said could be the culprit. "They" being my Pediatrician and anyone who had a voice or opinion on the internet. Baby still screamed, and let me be specific... not cry, SCREAMED! (step #2.) Stopped breastfeeding and moved her to Alimentum formula. (this made the biggest difference) This was gut wrenching hard but, like a ray of light after the storm... within 12 hours, she smiled. She did well on this for about 3 weeks. (step #3.) Then it got bad, the doctor recommenced adding rice cereal to thicken the formula to keep it down and to keep her upright for 30 minutes after feeding. (step #4.) She also prescribed Zantac. Ok, she was better for a while. And I use the term better very loosely. I spent my days in the rocking chair so she would sleep. Otherwise she would go down and sleep for 30 minutes and then scream and scream, you couldn't get her back to sleep. Screams that a little baby should never have to make. Full out screams! On Mothers Day she ended up in the emergency room. She would no longer eat, just cry. Never ever was this in my plan. (step #5.) ER said Maalox for 4 days and call her doctor to change medicine. (step #6.) The doctor moved her to Prevacid. The Maalox was like a miracle, a miracle that could only last for 4 days. Her throat was so torn up from the acid and the screaming she was hoarse. It completely broke my heart. The Prevacid was horrible, it was like taking a step backward. (step #7.) Moved to Nexium, and again we saw a difference within 12 hours. It has been a week. She is cooing again, she is moving again. During this war with reflux she had stopped doing anything. The cooing sounds stopped, she could roll from back to front and front to back... it stopped. She was just trying to make it through the day, there was no more advancement, no more learning new things. At 4 months it was the worse. I say that now that we are at 5 months and on Nexium. It breaks my heart to think as her Mommy I was so very  helpless. Yes, I gave up my life and have lived practically day and night in the rocking chair but that was a very small price to pay for the pain I saw in my daughters face day after day. Now in this very moment, I feel like a weight has been lifted off of my shoulders. Please don't think everything is all sunny and roses. I still rock her for her morning and afternoon naps, the two of us becoming one in the rocking chair. But.... I see her smiling, I heard her laugh. "They" say most reflux resolves itself around 6 moths when the valve closes and the stomach acid can't flow up any longer. I hope with all hope that this is our case. So, that is the new plan, or not?

And I can't help but wonder if eczema was a sign of the coming reflux? If they go hand in hand?
It is very hard to condense 5 months into one post, but know that each step was tried for 2 to 3 weeks before the doctor would consider moving on to the next step. A very slow process.... 

Our princess at her 5 month old portrait, taken later that it should have been so we could wait for her to feel better. I had no idea how long we would have to wait. I still have concerns, I'm not the type to rush out and put my baby on medicine. Nexium has a load of side effects but for now, the benefits out way the risk. 




A side note: it has been 3 weeks now that Isabelle has been on the Nexium. It did make some of her eczema flare up on her chest and neck. But... we have gone from living in the rocking chair to her putting herself to sleep in her bed. YIPPEE! She has a wedge under her mattress and about 6 pacifiers in there. We put her in the bed and she goes from taking one pacifier out and putting in another over and over until she gets tired, then she puts her hand out and she rubs the furry wall. (that is what we call it) The middle part of her bumper pad is a little soft and fuzzy. She likes to touch it.  <3

~kristen

And an update... Isabelle is 15 months old and we stopped the Nexium this month. The dose was adjusted as she grew. Her enema is still here around her shoulders and the back of her neck so we moisturize daily. 

On this Mother's Day, I'm thinking of you

I'm sitting here on the couch watching tv and I look down at my coffee table and see a bib, noonie, baby brush and a toy Brobee from yo gabba gabba and, I smile. Almost 4 years ago I married my husband and we began our amazing life together. And we started trying to have a baby. Now, I say we started the process of trying to have a baby. I didn't know at that time that it would be a process. We have gone through so much to get here and yet it doesn't feel like we have. Ivf is a blurr, our two miscarriages are a blurr, all the tears and doubt is a blurr. I have my baby. The hardest part about infertility is not knowing the end result. My Isabelle is the baby I was meant to have and I had to go through a process to get her. If I would've known how great the end would be, I wouldn't have worried so much. Through those 3 years of trying, I couldn't be happy. I had a great life but couldn't get the idea of never being able to have a baby out of my mind. But those 3 years we grew so much stronger  and had some great memories as a married couple and now we get to live our life as a family. Infertility isn't fair, it's cruel and can break your heart. But I didn't let it break me, I kept fighting and look where I am now. Thank you God for everything I have been through. Everything has brought me to this moment with this baby, my baby, the one that was meant for me. Last Mother's Day I was pregnant with Isabelle, the Mother's Day before that I was pregnant with the first baby I lost and this Mother's Day I am holding my baby and believe me when I say, its better than I could've ever imagined. 

So for this Mother's Day, I'm thinking of you. I want to take a moment to say I am thinking about every woman out there that is longing to be a mom but hasn't yet had a chance to hold her own child in her arms. Whether it's due to infertility, pregnancy loss, infant loss, or one of many other reasons it doesn't matter. You are all so special and loved.

You have my nose!!!

I went for my last ultrasound yesterday, everything checked out great. Good fluid, good growth, you could see her bladder was full, so she is doing everything she is supposed to be doing. My doctor (who is absolutely wonderful) estimated her weight around 5.5 pounds. I will be 34 weeks tomorrow and I am already packing my hospital bag. No, nothing is wrong but this far along you start to hear "the stories". You know the ones... my water broke 4 weeks early, my water broke 5 weeks early. So.... I have started packing my bag and making list. I guess you can say that I have entered the "nesting" stage. Her nursery is almost finished. Just a few items left to pick up. We still need a diaper genie, which is a MUST have on one of my list.

Did I mention that I am a worrier??? I wish I could be one of those people that could say being pregnant was wonderful! It took us 3 years to get here and countless heartache. I was happy to through all the pregnancy symptoms. BRING THEM ON! :-) I finally had a little baby growing inside of me but, after my first IVF and my FET both resulted in miscarriages and the subchorionic hematoma that put me on bed-rest at 8 weeks with this little bean. I have spent most of my pregnancy worrying. Just this little nagging "what if" at the back of my brain. Now, with only 6 weeks left, I only want to have her safe and sound in my arms. I am not sure how you can love someone so much that you have never met but, my heart is so full of love for her. A happy joyous love that if I think about it too long, it makes me cry.

My sweet little Isabelle, you have my nose! <3


~Kristen

Infertility is worth the fight

The other day I was watching T.V. with my husband and I said, "Sometimes when you're not here and I'm home alone during the day I just cry because I'm so happy"
He said, "You're happy that im not here with you?!"
hahaha that came out wrong...
I am just in awe that I am 14.4 days pregnant. So many times I doubted that i could ever get here. It was a long journey and at times, it felt hopeless... And now here I am :)

 I still have a struggle with letting myself be happy and not worry. Because of my miscarriages, I'm still terrified that this baby will go away too. I have my home doppler that I use at home when I'm feeling nervous and need reassurance and when I put it on my stomach and hear the heartbeat..I am just in awe...there is still a baby in there. I am pregnant. I feel so lucky, everything I had to go through to get here means nothing because I'm here. I have friends that feel like they can't do IVF more than once, or even once because the emotional roller coaster associated with it and the feeling of having hope and then losing it is sometimes too much to bear. I don't know how but I kept going, I always knew that this could happen for me and looking back what if I would've been defeated by everything I had gone through? I wouldn't be here now.  wouldn't have this miracle growing inside me. All the doctor appointments, medications, ultrasounds and injections was just our journey to have our miracle. And because of that journey, we will and do appreciate every moment of this and this baby will be our world. I have appreciation for how much this is truly a gift.

 It is tough... fighting infertility is probably one of the hardest things you will ever have to go through. BUT beating infertility is the most amazing experience of my life.

~blessed Kristen

IVF... and it worked!!

We had our first ultrasound on May 15th. Our little bean had a heartbeat of 118.
A "heartbeat", never have we seen a heartbeat with our other 2 pregnancies. It was an unbelievable feeling. Looking back now, I was still in disbelief at the time. I did not allow myself to be happy. But, dreams really do come true!




~Kristen

The woes of two pink lines

Ok now that I have a positive, I am kinda freaking out. But I have to remember, just because I have had two miscarriages in the past year does not mean that mine will end that way again. I have to not let FEAR get a hold on me..

 The next step is testing again to see the line get darker and then my first beta on Friday. I have to celebrate the little wins. This is a WIN! And the line was so early, that means the HCG is strong..that is good. I have the right to enjoy every step of my IVF journey and celebrate every victory.

I need to remember that women have miscarriages and then have a live birth all of the time. This could be my time. Everything I want could be waiting for me
...and I'm ready

~Kristen

IVF, Infertility Sucks!

-You have been betrayed by your own body
-I feel broken inside
-It changes you
-You plan, you fail, you plan again, you fail 
-Fear of the "what if", what if it never happens
-Seeing a newborn now causes you pain
-Every month, you die a little inside
-My life is medication, appointments and shots
-You cry tears of broken dreams
-You pray 
-You WAIT, you wait to start meds, you wait to see if the follicles are growing, you wait to see how many eggs they retrieved, you wait to see if they fertilized, you wait to see if they are growing and dividing normally, you wait for the transfer day, you wait to see if it worked this time, you wait to see if you miscarry again...

Then you take a deep breath, hold your head up high
And try to be strong yet again

But, when my life feels beyond hard, I hold the hand of the person that loves me most
And I am thankful



~Kristen

IVF, Believe in Miracles

The moment you're ready to quit is usually the moment right before the miracle happens. 

Working on my miracle...

Don't give up!

~ hopeful Kristen

Third time is the charm..right guys?!

Hello all, long time no write

It is that time again... Invitro time. This will be my second IVF cycle and my third cycle in all, including a frozen cycle. Last year in April I did my first IVF cycle and now in April this year, I will be doing my second IVF cycle.

I went in today and talked to my RE; my protocol for IVF #2 will change in the doses of medicine (since last time I made 27 eggs and was extremely overstimulated) and this time, they will be performing assistant hatching on my embryos. I looked up assistant hatching today online but this is how my RE explained it. My embryos are implanting and I am getting pregnant, I am just not staying pregnant. Assisted hatching will remove the outer layer of the embryo to hopefully help it implant better which will hopefully make it stick. I asked my RE if he could squirt some super glue in there before the embryo transfer but he didnt think that was a good idea ;)

I start my follistim on March 25th and stimming on April 1st

I feel surprisingly optimistic since nothing has ever been found to cause our infertility and I am getting pregnant but miscarrying; I just feel like it is a numbers game at this point. It is just how many times will it take before it works and sticks?? Sooner or later it will stay... so now we just hope that is it sooner and not later

Will will beat the dreaded "Infertility Monster"!

~Kristen

IVF, Miscarriage #2

I started spotting on Thursday and it felt like my world was ending. My beta numbers had been so high that I thought maybe I was having two. Which gave us twice the chance to end up with one baby. We went for an ultrasound on Monday and it showed that there was still a baby in there, we did another beta and the number had dropped. I stopped all my progesterone and estrogen and had a natural miscarriage at home. And now I am trying to just survive every day and not feel like all hope is lost. With my first miscarriage, I could make excuses on why it didn't work and still be hopeful to try again but after the second one...I am pretty terrified that it will never work. The feeling is overwhelming, it is effecting every aspect of my life. I am sad, very very sad. I feel like I'm hitting rock bottom, which is hard for me because I am such a positive person. And now, I just want this to be over. I was so motivated to do whatever it took for us to have our baby and now I am just ready to stop obsessing about this everyday. I can't imagine how it would feel to have a month that isn't disappointing. For the past 2 1/2 years, I have had hope and got let down every single month. It is truly emotionally exhausting. In my state, you cannot adopt locally until you've been married for 3 years, you can only do an overseas adoption. I never thought I would feel like this, I thought I would fight to the end and never give up but I just want a baby, a baby to love and give my everything to, i am just so ready. I am just feeling lost and sad and terrified that we will do invitro again and get the same devastating result. I have an appointment with my RE on December 19 to discuss our next step, which we have decided to spend another $14, 000 and do invitro again. I just can't imagine if I end up having another miscarriage, or how I am suppose to survive if this happens again...but I can't give up yet on having my own baby... I won't give up yet. The only thing to do when you have reached rock bottom, is to pick yourself up. I am ready to pick myself up...

~Kristen

She turned her can'ts into cans and her dreams into plans

I called my RE today and they are in the middle of a FET/IVF cycle now and there will not be another one until January. But since i start my period in a week, i can still make this cycle. THANK GOD! I can't imagine having to wait until January...i would be crushed. I will call next week when my period starts to begin my birth control. I'm ready to make this work! I have heard good things about the success rate of Frozen Embryo Transfers and my friend even sent me this link to an article saying that Frozen Embryos may result in healthier babies

http://m.guardian.co.uk/science/2012/sep/04/ivf-embryos-frozen-healthier-babies?cat=science&type=article

With the new day comes new strength and new thoughts. -Eleanor Roosevelt

Life is good again. Not great but its easier to enjoy the little things. I am trying to track my ovulation which who knows if that is a good thing or a bad thing because it leads to many questions. Can I even track my ovulation? Is tracking my ovulation going to make me crazy because why would there be any chance that i could just get pregnant on my own now? Or is it making it better because it reminds me of when we first got married? That was before the word "infertility" was in my life. Before i was a human encyclopedia of definitions and statistics based on age and fertility. It was the beginning and it was full of hopes and dreams that had yet to be crushed by infertility. No IVF, no injections, no IUI, no femera, no clomid. Just a thermometer, ovulation detections strips and a lot of sex. This week has been like the old days, when my biggest fertility worry was trying to decide if my ovulation strip line is dark enough to call ovulation and hoping that maybe it is. It feels good to hope and dream again. Even though i will always remain cautious because of past events. But a little dreaming is better than none at all. Dreaming is a luxury that infertility takes from you. It takes your hopes and dreams and makes you doubt everything. It makes planning seem impossible, because "we might have a baby by then". But i wont let it win, I will continue to dream and we will get our family. I am a dreamer but I'm not the only one.

We gain strength, and courage, and confidence by each experience in which we really stop to look fear in the face... we must do that which we think we cannot.
 -Eleanor Roosevelt

 Dream a little dream for me...

IVF, Miscarriage is a four letter word

I had an appointment with my regular obgyn on Tuesday. We weren't sure how far along I was so they said they would do an ultrasound so they could start my pregnancy file and give me a due date. I was so excited to be at my normal obgyn, i finally got here, i finally felt like just a normal pregnancy patient and not a infertility patient.  My mom was with me and we couldn't wait to be able to get an ultrasound. We talked about how we wanted them to do one for a week before the appointment. She didn't get to see the baby yet and I really wanted to hear the heartbeat to finally get a little relief. I had no idea that this ultrasound would change everything. No heartbeat. I should have been measuring 8weeks3days but I was only measuring 6weeks2days. My baby stopped growing, i had a miscarriage.

I chose to have a d and c. I couldn't imagine having to bleed my baby out in the toilet and the thought of our baby falling into the toilet was more than my husband could bear. I had my d and c this morning. It is impossible to describe the feeling of losing a pregnancy. One minute i was about to see my baby's heartbeat on the ultrasound and watch all my dreams really be true and the next minute...it is all over. I have no baby. I had been walking around for 2 weeks with no baby. I thought of all the times we laughed and talked to the baby in my belly, how we fought over names and the sex we wanted. And my favorite thing was my husband kissing my belly when we were laying together or when he would leave the house for work. It was finally real, we would be a family. All of a sudden, i am not pregnant. I think the hardest thing was seeing my husband so devastated, i feel like my body let him down, I feet like I let him down. We were finally letting ourselves be excited and i couldn't stop imagining how beautiful our baby would be. I couldn't wait to see what our combined genes would create. But now it is just gone.

We are getting through this together and will not let any tragedy, no matter how devastating, tear us apart. We will get through this together. And we will not give up. Atleast i know now that i can get pregnant, we will not stop until our miracle baby comes through. To anyone that has had a miscarriage, i'm so sorry. It is hard to believe that all this pain is part of God's plan but we will not lose faith and neither should you. Don't give up ladies, we will do everything we can to control our own destiny and make our dreams come true. We will be Moms and create the family we deserve. Believe in miracles <3

27 Eggs!!!

My IVF journey continues.. 
I had my egg retrieval yesterday morning and let me just say that i was terrified!! I never had an i.v. or anesthesia before and i was not sure what to expect. And of course, it wasn't bad at all. The nurse was amazing and the i.v. went in great then we sat and waited for our turn in the surgical room. I remembered being wheeled into the surgical room and walking to a table and putting my feet in the stirrups, then the anesthesiologist said he would give me something to feel relaxed but not to fall asleep yet and i don't remember one thing after that until i woke up back in my room. The procedure took about 25 minutes to complete.  My husband said that i was already in my room for about 20 minutes but i don't remember any of that time. He said that with all those drugs i seemed wasted and that it was hilarious. He said that i asked how many eggs we got and he said 27. And then i said, "27 holy shit, that's a lot. Give me five mouther fucka". Yeah..i do not usually talk like that and this was with the Dr and Nurses still in there. (had to be the drugs)  Haha. At least we have something to laugh about, we always have something to laugh about :) We have been working for this moment for over a month, the egg retrieval, and i had 27 eggs....hell yeah!!!!!!